Once Upon an Entourage: A Parisian Changemaker Shares Her Story
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
Listening Isn’t Nonsense: Becoming Your Own Patient Advocate
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
Desperation Can Spur Innovation: Recap of EE’s First Virtual Event
As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The... Read More
High Risk During a Pandemic: The CF Community’s Superpower
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
Mixed Feelings: Living with Rare CF Mutations
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
All Hands On Deck: It is Cystic Fibrosis Awareness Month
While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know... Read More
Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak
On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a... Read More
North American CF Conference 2019: Advances for Nonsense Mutations of CF
Emily’s Entourage (EE) attended the North American Cystic Fibrosis Conference (NACFC) in Nashville, TN from October 31 to November 2, 2019. This... Read More
CommunitEE Partners: Sweet Stuff Gourmet Candy
Since its founding in 2011, Emily’s Entourage (EE) is grateful to have developed meaningful relationships with our local community. These relationships have... Read More
Happy 35th Birthday, Emily!
Today’s guest blogger is our treasured EE Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our... Read More
