EE Launches “Raring to Go!” Campaign for Rare Disease Week
Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day... Read More
Unveiling the Promise of Gene-Based Therapies for Cystic Fibrosis: Key Highlights from EE’s 2023 Scientific Symposium
by Chandra Ghose, PhD, EE’s Chief Scientific Officer In December 2023, Emily’s Entourage (EE) hosted a scientific symposium, The Promise of Gene-Based... Read More
Our Hope for More Inclusive CF Care and Treatments
In December 2021, I was sitting down to lunch with my husband and glued to my phone. I wasn’t scrolling Instagram or... Read More
Happy 39th Birthday to Emily! Will You Dream Big with Us?
By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend Hi there, Jess here! I’m back again to wish... Read More
NACFC 2023: Key Takeaways in Cystic Fibrosis Research
by Chandra Ghose, PhD, EE’s Chief Scientific Officer The North American Cystic Fibrosis Conference (NACFC) 2023, held in November in Phoenix, AZ,... Read More
The Stars Aligned at the 2023 Evening with Emily’s Entourage: True North
We are truly seeing stars! On Saturday, October 14, 2023, Emily’s Entourage (EE) held our annual Evening with Emily’s Entourage gala, “True... Read More
Three New Phages Developed for Nontuberculosis Mycobacteria in People with CF
Pulmonary bacterial infections, specifically drug-resistant infections, drive disease progression and mortality in people with cystic fibrosis (CF). Among the worst are non-tuberculosis... Read More
Unpacking the Promise of Gene-Based Therapies: Insights from EE’s Gene Therapy Town Hall
On August 22, 2023, Emily’s Entourage (EE) hosted a virtual town hall meeting that delved into the exciting world of gene-based therapies... Read More
My Journey to Diagnosis as Someone Who Doesn’t Look Like the “Typical” CF Patient
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
Our Rare Journey within the 10%
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is... Read More
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