EE Awards $660K to Cystic Fibrosis Nonsense Mutations Research
Emily’s Entourage (EE) is thrilled to announce that three research grants have been awarded to an esteemed group of international researchers, amounting... Read More
Behind The Scenes: Why I Teamed Up With EE For A SEEcret Project
Meet guest blogger Elizabeth Phillipson-Weiner, the mastermind behind EE’s “sEEcret project.” For fear of divulging key clues, we will keep the intro... Read More
Fueled by Hope: Overcoming Challenges as a CF Patient-Scientist
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our... Read More
Dreaming of the Day: A Look Into Life with CF
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our... Read More
Fire It Up… May is CF Awareness Month!
May is National Cystic Fibrosis Awareness Month and at Emily’s Entourage, we never go dark… we’ll be spreading awareness, information and fun... Read More
9 Fresh Ways to Help EE this Spring
Looking for some fresh ways to shine a light on your commitment to Emily’s Entourage this spring? Well you’ve come to the... Read More
EE Launches Organoid Screening of Cystic Fibrosis Nonsense Mutation
Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical... Read More
From Arizona to Alabama: Raising Awareness For Rare Disease Week
Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when... Read More
Fall in LovEE with Emily’s Entourage: Meet Sarena
Our #FallinLovEE with EE Series continues this month, this time with longtime EE friend, volunteer, and go-to gal, Sarena Snider. As Sarena... Read More
Happy 33rd Birthday, Emily!
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our... Read More
