EE Rare Disease Week 2021: “Rare is Everywhere”
Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to... Read More
Desperation Can Spur Innovation: Recap of EE’s First Virtual Event
As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The... Read More
High Risk During a Pandemic: The CF Community’s Superpower
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
The Only Thing You Have Control Over: Appreciating CF Caregiving
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
All Hands On Deck: It is Cystic Fibrosis Awareness Month
While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know... Read More
Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak
On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a... Read More
Happy 35th Birthday, Emily!
Today’s guest blogger is our treasured EE Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our... Read More
A Foundation of the Future: The 8th Annual “Evening with Emily’s Entourage” Gala
Can we just say…WOW. On Saturday December 7, 2019, Emily’s Entourage (EE) held its 8th Annual Evening with Emily’s Entourage Gala at... Read More
Training for a Cure: CF Researcher Raises Funds for EE
Emily’s Entourage (EE) is incredibly honored to have a group of scientists dedicated to accelerating research and drug development for nonsense mutations... Read More
Address the Unseen Scars: Mental Health and Cystic Fibrosis
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
