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Tag

cystic fibrosis

EE Rare Disease Week 2021: “Rare is Everywhere”

22 Feb 2021
0
Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to...
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Desperation Can Spur Innovation: Recap of EE’s First Virtual Event

29 Jun 2020
0
As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The...
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High Risk During a Pandemic: The CF Community’s Superpower

18 May 2020
0
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices...
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The Only Thing You Have Control Over: Appreciating CF Caregiving

04 May 2020
0
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices...
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All Hands On Deck: It is Cystic Fibrosis Awareness Month

01 May 2020
0
While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know...
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Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak

14 Mar 2020
2
On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a...
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Happy 35th Birthday, Emily!

07 Jan 2020
0
Today’s guest blogger is our treasured EE Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our...
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A Foundation of the Future: The 8th Annual “Evening with Emily’s Entourage” Gala

21 Dec 2019
0
Can we just say…WOW. On Saturday December 7, 2019, Emily’s Entourage (EE) held its 8th Annual Evening with Emily’s Entourage Gala at...
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Training for a Cure: CF Researcher Raises Funds for EE

23 Aug 2019
0
Emily’s Entourage (EE) is incredibly honored to have a group of scientists dedicated to accelerating research and drug development for nonsense mutations...
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Address the Unseen Scars: Mental Health and Cystic Fibrosis

31 May 2019
0
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices...
Read More
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Emily’s Entourage
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Emily's Entourage
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • Our Mission
    • Our Approach
    • Our Impact
      ▼
      • 2019 Impact Report
    • Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Publications
    • Patient Registry: CF Nonsense Mutation
    • For Researchers
      ▼
      • Research Resources
      • Research Inquiries
      • Funding Opportunities
  • Events
    ▼
    • Signature Events
      ▼
      • 2020 Year End Campaign
      • EENY: LIVE! Virtual Benefit
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
      ▼
      • EE Presents First-Ever Virtual Video Premiere Event
      • EE Launches First Virtual Benefit
      • Spirovant Acquisition
      • FDA Approval of Trikafta
    • Awards
    • Videos
  • Take action
    ▼
    • Donate to Emily’s Entourage
      ▼
      • Donate Now
      • Other Ways to Give
    • Get Involved
      ▼
      • Sign Up for Updates
    • Fundraise
      ▼
      • Start Your Fundraiser
      • What You Can Do
    • Shop EE
  • Blog
  • Contact Us