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Tag

cystic fibrosis

Address the Unseen Scars: Mental Health and Cystic Fibrosis

31 May 2019
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices...
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Emily Speaks at Translate Bio’s CF Awareness Month Event

29 May 2019
On May 29, Emily’s Entourage (EE) attended Translate Bio’s Cystic Fibrosis (CF) Awareness Month event in Boston. EE Co-Founder, Emily Kramer-Golinkoff, provided...
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EE Awards Over $400,000 to Cystic Fibrosis Research

20 May 2019
Emily’s Entourage (EE) is thrilled to announce that two new research grants and one stimulus grant have been awarded to a group...
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The Luckiest Man Alive: Loving a Woman with CF

17 May 2019
From time to time we invite guest bloggers who are part of the Emily’s Entourage community to contribute their unique voices to...
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The Flotation Device I Cling To: Living with Nonsense Mutations of CF

03 May 2019
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices...
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The 4th Annual EENY: Full Artist Lineup

23 Apr 2019
The 4th Annual EENY: ULTRA VIOLET in NYC is just around the corner on May 4, and Emily’s Entourage (EE) is absolutely...
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Emily’s Thoughts on “Five Feet Apart”

18 Mar 2019
“Have you seen the film? What do you think?” I’ve been encountering these questions everywhere I turn, in real life and on...
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Emily’s “Bucket List” of Life Dreams

19 May 2014
In my 29 years with CF, there are still so many things I don’t understand about this crazy disease, but if there’s...
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

Tax ID #45-3768161

Emily's Entourage
Website Managed By: Strategic Websites
  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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