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Tag

cystic fibrosis

Tickets On Sale Now for Emily’s Entourage 2025 Gala, “High-Res,” Illuminating a Sharpened Vision for Therapeutic Breakthroughs in Cystic Fibrosis

20 Aug 2025
An unforgettable night of bold visuals, immersive storytelling, and breakthrough science—support a powerful mission and experience a future coming into focus for...
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Advancing CF Science: Emily’s Entourage Announces New 2025 Research Grants

05 Aug 2025
EE Awards Research Grants to Fuel Innovation for the Final 10% Emily’s Entourage is proud to announce the 2025 recipients of our...
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Lines of Connection, Paths to Progress: This CF Awareness Month, It’s Time to #CrossOutCF

30 Apr 2025
Cystic Fibrosis Awareness Month 2025 is here, and at Emily’s Entourage (EE), we’re celebrating the unwavering spirit of the cystic fibrosis (CF)...
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Emily’s Entourage Officially Launches Global ‘CF Clinical Trial Connect’ to Drive Breakthrough Therapies for the Underserved CF Community

12 Sep 2024
New, upgraded platform connects people with cystic fibrosis worldwide with new clinical trial opportunities, accelerating development of therapies for those who remain...
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Emily’s Entourage Awards $1,487,500 Research Grant to Launch Pioneering Phage Clinical Trial for Combatting CF Infections

13 Jun 2024
The funded project, led by research teams at the University of California, San Diego and the University of Pittsburgh, aims to advance...
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Emily’s Entourage Co-founder Awarded 2024 Leadership in Personalized Medicine Award by the Personalized Medicine Coalition

12 Jun 2024
Emily Kramer-Golinkoff, an individual with cystic fibrosis and co-founder of Emily’s Entourage, is the winner of this year’s Award for Leadership in...
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Emily’s Entourage Awards $858,932 in Inaugural Collaborative Research Grant for Novel Approach to Targeted Airway Delivery in Cystic Fibrosis Treatments

29 May 2024
Through the newly-awarded funding from EE, research teams from the University of Iowa, CHOP, and the University of Rochester seek to overcome...
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Stolen Dreams and Freedom: An Adult With CF’s Journey to a Double-Lung Transplant

23 Sep 2021
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to...
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Straddling the Line Between the Sick and Well Worlds: A Mother Shares Her Late Daughter’s 25-Year-Long Battle With Cystic Fibrosis

02 Aug 2021
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to...
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Drawing a Future Without CF: Recap of EENY’s 2021 Virtual Event

21 Jun 2021
With the world is still in the throes of a global pandemic and in-person gatherings, while starting to take hold, still not...
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

Tax ID #45-3768161

Emily's Entourage
Website Managed By: Strategic Websites
  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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