Emily's Entourage

28 de março de 2018

EE lança rastreio em organóides da mutação sem sentido da fibrose cística

Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands. This grant reflects a new...

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08 Mar 2018

Do Arizona ao Alabama: Sensibilização para a Semana das Doenças Raras

Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer than 200,000 people worldwide. With...

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13 Fev 2018

Apaixone-se pela Emily's Entourage: Conheça a Sarena

Our #FallinLovEE with EE Series continues this month, this time with longtime EE friend, volunteer, and go-to gal, Sarena Snider. As Sarena recounts how she fell in love with Emily’s...

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07 Jan 2018

Feliz 33º aniversário, Emily!

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is our treasured EE...

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22 Dez 2017

Recapitulação: A noite de 2017 com a gala da Emily's Entourage

We are still floating back to earth from an otherworldly, dazzling evening that was the 2017 Evening With Emily’s Entourage! This gala—our sixth—was truly breathtaking. Anthropologie, the official 2017 Decor...

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04 Dez 2017

EE atribui $1,4 milhões de euros para investigação sobre mutações nonsense da fibrose cística

Emily’s Entourage is proud to announce that five research grants were awarded to a dream team of investigators from around the world, amounting to a total of $1.4 Million over two...

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28 de novembro de 2017

As dez principais perguntas (e respostas!) sobre a Gala Evening with Emily's Entourage deste ano

In case you haven’t noticed, we’re pretty excited that there are only 5 days separating us from our annual Evening with Emily’s Entourage Gala! We know that many of you...

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16 de novembro de 2017

Conheça os campeões da Emily's Entourage de 2017

Cue the Rocky Theme song— because Philadelphia’s finest champions are only weeks away from hitting the ring. The Emily’s Entourage 2017 Champions Campaign has made it’s way back to Philadelphia...

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10 Out 2017

Apaixonar-se pela Emily's Entourage: Conheça a Pam

As sweatshirts and boots make their way out of the backs of our closets, and the leaves begin to change color, we are reminded it’s officially fall in Philadelphia,...

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20 Set 2017

Nova ferramenta na caixa de ferramentas: Emily's Entourage cria um Organoide de Mutação Nonsense

Emily’s Entourage has always operated with a sense of urgency and refusal to accept the status quo for Cystic Fibrosis (CF), guided in large part by Emily and her family’s...

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20 de junho de 2017

Emily discursa na Convenção Internacional BIO

Wondering where in the world is Emily this week? She can be found in sunny San Diego, CA, where she will be participating in two sessions for the 2017 BIO...

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16 de junho de 2017

EE fornece financiamento inicial para empresa de terapia genética da FC

We are proud to announce that Emily’s Entourage has provided seed funding to launch Talee Bio, a novel gene therapy company focused on developing revolutionary treatments and a cure for...

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01 Jun 2017

Recapitulação: Noite exclusiva de 2017 com a comitiva de Emily em Nova Iorque (EENY)

“This Entourage. All of you. You are the force that’s fueling the fight of a lifetime. And tonight, we have the chance to obliterate CF.” – Emily’s EENY speech It’s...

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15 de maio de 2017

10 formas de ajudar a EE

We often get asked the question from new or long time Entourage members, “how can I help?” With May being CF Awareness Month, we wanted to highlight how you could help...

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05 de maio de 2017

Coma um biscoito, encontre uma cura

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is longtime EE treasure Julie...

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04 de maio de 2017

As 5 principais razões pelas quais o seu apoio está a tornar a EE imparável

Emily’s Entourage is the only non-profit organization dedicated to fast-tracking research and drug development for rare, nonsense mutations of Cystic Fibrosis. Here’s why your support is making this Entourage unstoppable:...

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02 de maio de 2017

Pronto ou não... É o mês da sensibilização para a FC

It’s here, it’s here… our favorite month of the year! May is National Cystic Fibrosis Awareness Month and in true Emily’s Entourage style, we are going BIG to honor the...

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14 Abr 2017

Um olhar sobre a vida com uma doença crónica

Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind of legendary in the chronic illness world for...

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27 de março de 2017

Coalizão de Medicina Personalizada - Briefing e Lobby no Congresso

Ms Kramer-Golinkoff goes to Washington! Waving hello to the White House she visited a few times last year, Emily headed to the Hill last week to lobby Senators, their staff...

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05 Mar 2017

Conheça os campeões de 2017 da Emily's Entourage de Nova Iorque

About The Champions Campaign The Emily’s Entourage Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the quest to cure CF. The campaign has run...

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Blogue

EE lança rastreio em organóides da mutação sem sentido da fibrose cística

Do Arizona ao Alabama: Sensibilização para a Semana das Doenças Raras

Apaixone-se pela Emily's Entourage: Conheça a Sarena

Feliz 33º aniversário, Emily!

Recapitulação: A noite de 2017 com a gala da Emily's Entourage

EE atribui $1,4 milhões de euros para investigação sobre mutações nonsense da fibrose cística

As dez principais perguntas (e respostas!) sobre a Gala Evening with Emily's Entourage deste ano

Conheça os campeões da Emily's Entourage de 2017

Apaixonar-se pela Emily's Entourage: Conheça a Pam

Nova ferramenta na caixa de ferramentas: Emily's Entourage cria um Organoide de Mutação Nonsense

Emily discursa na Convenção Internacional BIO

EE fornece financiamento inicial para empresa de terapia genética da FC

Recapitulação: Noite exclusiva de 2017 com a comitiva de Emily em Nova Iorque (EENY)

10 formas de ajudar a EE

Coma um biscoito, encontre uma cura

As 5 principais razões pelas quais o seu apoio está a tornar a EE imparável

Pronto ou não... É o mês da sensibilização para a FC

Um olhar sobre a vida com uma doença crónica

Coalizão de Medicina Personalizada - Briefing e Lobby no Congresso

Conheça os campeões de 2017 da Emily's Entourage de Nova Iorque

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