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11 Apr 2024

May is Cystic Fibrosis Awareness Month: Let’s Dare to Dream Beyond CF!

May is Cystic Fibrosis (CF) Awareness Month, a time for the community to band together to spread awareness, advocate, share personal stories, and unite behind the mission of accelerating breakthroughs and a cure for 100% of the CF community! It is one of our favorite times of year at EE because it allows us to shine a light on the extraordinary CF community, which we are so proud to be a part of and feel deeply honored to share with you. 

Each year, EE’s CF Awareness Month theme is “Cross Out CF.” It highlights the urgent need to expand the progress in developing CF treatments and finish the job, ensuring that 100% of people with CF have a lifesaving therapy with nobody left behind. “Cross Out CF” reflects the resilience, unity, morale, and power of the CF community, especially when we band together to work toward our shared goal of developing therapies for the entire community. When we say 100% or bust, we mean it!

This year, our “Cross Out CF” campaign builds on our annual video and emboldens the community around the idea of daring to dream of a future beyond CF. We work to achieve that dream by advancing cutting-edge research and drug development, accelerating clinical trial recruitment, and convening key stakeholders to cultivate collaboration.

We envision a future where individuals with CF are freed from the emotional and treatment burdens, creating space for rich, dynamic lives filled with travel, family, career growth, education, and hobbies.

With our “Cross Out CF” campaign, we want individuals with CF, and especially those in the final 10% that do not benefit from current mutation-targeted therapies, to dream of this future state where they have the time, freedom, and confidence to live fuller, more enriching lives unconstrained by the horrors of CF. It is a future beyond CF. 

At EE, that is our singular goal and that is what CF Awareness Month is all about — banding together, promoting representation, celebrating our progress, doubling down for more, and forging forward like our lives depend on it. Because…. they do.

Let’s Get Social!

Throughout May, we will amplify CF stories and voices — from people with CF, family members, and researchers — demonstrating the incredible hope, strength, resilience, and diversity in our community.

On Mondays, we’ll see our Entourage’s true, global reach with our #WhereInTheWorldisEE series! On Tuesdays, the EE blog will feature voices from the CF community in the #CFStrong series. On Wednesdays, you’ll hear more about the important work and incredible progress at EE through our #EEupdates. 

Then, we’ll turn to the science, introducing you to the researchers working tirelessly to develop CF therapies through #SciencEE on Thursdays. To wrap up the week, #FactFriday will share more about CF and the critical need for treatments.

Get Involved 

All month long, get ready to learn, feel connected, and be inspired as we work towards achieving our ultimate goal: fast breakthroughs and a cure for 100% of the CF community. To get there, we need your help! Like a post, write a comment, or share a post to raise awareness. It all adds up and helps us spread the word far and wide.

Make sure to follow along on Facebook, Instagram, Twitter, LinkedIn, and our blog — and if you haven’t already, please subscribe to our e-newsletter. You can join the conversation using the hashtag #CrossOutCF!

At EE, we believe that every single person deserves to breathe deep and dream free.

That future depends on the development of lifesaving therapies for those left behind. We are working so hard to secure that future for every single person with CF, no matter the rareness of their mutation or their particular circumstance. 

Join us this month to learn, share, and help create a world where everyone with CF can dare to dream of a future that they actually believe in.

Thank You to Our CF Awareness Month Sponsors

We want to thank our generous 2024 Cystic Fibrosis Awareness Month campaign sponsors! Your support means the world to us as we work to “Cross Out CF” so that everyone with CF can dare to dream of a bright, long future.

 

 

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Q&A with EE’s First-Ever Chief of Staff, Genevieve Mack
The Future We All Deserve
The opinions stated by our guest contributors reflect the experiences and thoughts of the author alone. Our publication of these pieces does not reflect Emily’s Entourage’s endorsement or suggest a position on those opinions. The content on this site is for informational or educational purposes only and does not substitute professional medical advice or consultations with healthcare professionals.
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