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Tag

nonsense mutations

Emily’s Entourage Awards $1,487,500 Research Grant to Launch Pioneering Phage Clinical Trial for Combatting CF Infections

13 Jun 2024
The funded project, led by research teams at the University of California, San Diego and the University of Pittsburgh, aims to advance...
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Emily’s Entourage Co-founder Awarded 2024 Leadership in Personalized Medicine Award by the Personalized Medicine Coalition

12 Jun 2024
Emily Kramer-Golinkoff, an individual with cystic fibrosis and co-founder of Emily’s Entourage, is the winner of this year’s Award for Leadership in...
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Emily’s Entourage Awards $858,932 in Inaugural Collaborative Research Grant for Novel Approach to Targeted Airway Delivery in Cystic Fibrosis Treatments

29 May 2024
Through the newly-awarded funding from EE, research teams from the University of Iowa, CHOP, and the University of Rochester seek to overcome...
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Q&A with EE’s First-Ever Chief of Staff, Genevieve Mack

28 Mar 2024
We are thrilled to share that Genevieve Mack has officially joined Emily’s Entourage (EE) as our first-ever Chief of Staff. In a...
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Q&A with EE’s First-Ever Chief Scientific Officer, Dr. Chandra Ghose

10 Feb 2022
We are so excited to announce that Chandra Ghose, PhD, has joined Emily’s Entourage (EE) as our first-ever Chief Scientific Officer. We...
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Happy 35th Birthday, Emily!

07 Jan 2020
Today’s guest blogger is our treasured EE Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our...
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Training for a Cure: CF Researcher Raises Funds for EE

23 Aug 2019
Emily’s Entourage (EE) is incredibly honored to have a group of scientists dedicated to accelerating research and drug development for nonsense mutations...
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Emily Speaks at Translate Bio’s CF Awareness Month Event

29 May 2019
On May 29, Emily’s Entourage (EE) attended Translate Bio’s Cystic Fibrosis (CF) Awareness Month event in Boston. EE Co-Founder, Emily Kramer-Golinkoff, provided...
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EE Awards Over $400,000 to Cystic Fibrosis Research

20 May 2019
Emily’s Entourage (EE) is thrilled to announce that two new research grants and one stimulus grant have been awarded to a group...
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The Flotation Device I Cling To: Living with Nonsense Mutations of CF

03 May 2019
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices...
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Emily's Entourage Nonprofit Overview and Reviews on GreatNonprofits
Volunteer. Donate. Review.
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

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Emily's Entourage
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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