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Tag

cf awareness month

Lines of Progress: My Journey from Critical Illness to Change-Making Advocacy

30 Apr 2025
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights...
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The CF Brother Who Became a CF Scientist

30 Apr 2025
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights...
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GRAB A MARKER AND #CROSSOUTCF: MAY IS CYSTIC FIBROSIS AWARENESS MONTH

27 Apr 2021
During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a...
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Emily Speaks at Translate Bio’s CF Awareness Month Event

29 May 2019
On May 29, Emily’s Entourage (EE) attended Translate Bio’s Cystic Fibrosis (CF) Awareness Month event in Boston. EE Co-Founder, Emily Kramer-Golinkoff, provided...
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The Luckiest Man Alive: Loving a Woman with CF

17 May 2019
From time to time we invite guest bloggers who are part of the Emily’s Entourage community to contribute their unique voices to...
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The Flotation Device I Cling To: Living with Nonsense Mutations of CF

03 May 2019
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices...
Read More
Emily's Entourage Nonprofit Overview and Reviews on GreatNonprofits
Volunteer. Donate. Review.
  • Emily's Entourage Nonprofit Overview and Reviews on GreatNonprofits
    Volunteer. Donate. Review.
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

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Emily's Entourage
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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