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Press Releases

18 Nov 2024

Emily’s Entourage Celebrates Landmark Achievement: First Patient Dosed with Novel Gene Therapy Developed Through EE’s Visionary Model

Philadelphia, Pennsylvania—November 18, 2024—Emily’s Entourage (EE), an innovative 501(c)3 accelerating research for new treatments and a cure for the final 10% of people with cystic fibrosis (CF), proudly announces a pivotal milestone in its mission to speed breakthroughs for those with CF who do not benefit from currently available mutation-targeted therapies: Spirovant Sciences, a clinical-stage gene therapy company that EE helped launch,...
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02 Oct 2024

Emily’s Entourage to Host 2024 Gala, “Efflorescence,” Celebrating Pivotal Breakthroughs in the Race to Develop Lifesaving Therapies for the Final 10% of People with Cystic Fibrosis

Emily’s Entourage’s annual gala invites the public to join leaders in science and the cystic fibrosis community to make a meaningful impact by celebrating advances in research and supporting life-saving therapies for the final 10% still awaiting effective treatments. Philadelphia, Pennsylvania – October 2, 2024 – Emily’s Entourage (EE), an innovative 501(c)3 accelerating research for new treatments and a cure for the...
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30 Sep 2024

Paul McCray, Jr., MD, Announced as Recipient of Emily’s Entourage 2024 Trailblazer Award

The award recognizes Dr. McCray for his pioneering work in gene therapies and dedication to the final 10% of the cystic fibrosis community who do not benefit from current CFTR modulators. Lower Merion, PA — Sept. 30, 2024 — Emily’s Entourage (EE), a 501(c)(3) foundation accelerating research for new treatments and a cure for the final 10% of people with cystic fibrosis...
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12 Sep 2024

Emily’s Entourage Officially Launches Global ‘CF Clinical Trial Connect’ to Drive Breakthrough Therapies for the Underserved CF Community

New, upgraded platform connects people with cystic fibrosis worldwide with new clinical trial opportunities, accelerating development of therapies for those who remain unserved by current CFTR modulators Lower Merion, PA – September 12, 2024 — Emily’s Entourage (EE), an innovative 501(c)3 accelerating research for new treatments and a cure for the final 10% of people with cystic fibrosis (CF), is thrilled to...
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13 Jun 2024

Emily’s Entourage Awards $1,487,500 Research Grant to Launch Pioneering Phage Clinical Trial for Combatting CF Infections

The funded project, led by research teams at the University of California, San Diego and the University of Pittsburgh, aims to advance phage therapy into clinical practice, standardize clinical trials to combat antibiotic-resistant pathogens prevalent in cystic fibrosis. Lower Merion, PA – June 13, 2024 — Emily’s Entourage (EE), an innovative 501(c)3 accelerating research for new treatments and a cure for the...
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12 Jun 2024

Emily’s Entourage Co-founder Awarded 2024 Leadership in Personalized Medicine Award by the Personalized Medicine Coalition

Emily Kramer-Golinkoff, an individual with cystic fibrosis and co-founder of Emily’s Entourage, is the winner of this year’s Award for Leadership in Personalized Medicine presented by the Personalized Medicine Coalition. Lower Merion, PA – June 12 2024 — Emily Kramer-Golinkoff, co-founder of Emily’s Entourage (EE), an innovative 501(c)3 that accelerates research for new treatments and a cure for the final 10% of...
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29 May 2024

Emily’s Entourage Awards $858,932 in Inaugural Collaborative Research Grant for Novel Approach to Targeted Airway Delivery in Cystic Fibrosis Treatments

Through the newly-awarded funding from EE, research teams from the University of Iowa, CHOP, and the University of Rochester seek to overcome existing limitations in currently available cystic fibrosis therapies by leveraging advanced novel adeno-associated virus (AAV) capsid variants. Lower Merion, PA – May 29, 2024 — Emily’s Entourage (EE), an innovative 501(c)3 that accelerates research for new treatments and a cure...
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21 Nov 2023

Emily’s Entourage to Host Scientific Symposium on the Promise of Gene-Based Therapies for Cystic Fibrosis

Philadelphia, PA – November 21, 2023 – Emily’s Entourage (EE), an innovative 501(c)3 that accelerates research for new treatments and a cure for the final 10% of people with cystic fibrosis (CF), including those with nonsense mutations, today announced its 2023 scientific symposium, The Promise of Gene-Based Therapies for Cystic Fibrosis, to be held on December 4 – 5, 2023, at Quorum...
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

Tax ID #45-3768161

Emily's Entourage
Website Managed By: Strategic Websites
  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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