Q&A with EE’s First-Ever Chief of Staff, Genevieve Mack
We are thrilled to share that Genevieve Mack has officially joined Emily’s Entourage (EE) as our first-ever Chief of Staff. In a recent interview, we... Read More
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
CLINICAL TRIALS
Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient.
PATIENT DATABASE
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
EE Launches “Raring to Go!” Campaign for Rare Disease Week
Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day on February 29,... Read More
Unveiling the Promise of Gene-Based Therapies for Cystic Fibrosis: Key Highlights from EE’s 2023 Scientific Symposium
by Chandra Ghose, PhD, EE’s Chief Scientific Officer In December 2023, Emily’s Entourage (EE) hosted a scientific symposium, The Promise of Gene-Based Therapies for Cystic... Read More
Our Hope for More Inclusive CF Care and Treatments
In December 2021, I was sitting down to lunch with my husband and glued to my phone. I wasn’t scrolling Instagram or TikTok. Instead, I... Read More