Emily speaks about Jewish Genetic Diseases at Har Zion Temple
On January 12th, Har Zion Temple in Penn Valley, PA presented a program entitled ‘“Fitting into Your Genes: Jewish Genetic Diseases — Data, Dilemmas and... Read More
Fast Breakthroughs for Cystic Fibrosis
Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
CLINICAL TRIALS
Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient.
PATIENT DATABASE
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Recent Blog Posts
Fabulous February Events for Emily’s Entourage
February is full of fitness and fun in support of Emily’s Entourage and our quest to find a cure for Cystic Fibrosis. Mark your calendars... Read More
#Throwback Thursday: Some of our favorite memories with Emily!
Hello everyone! It’s Jess here, and I wanted to ask you to join me and all of EE in wishing Emily a VERY happy birthday!!!... Read More
An Evening with Emily’s Entourage: A Recap
Our second annual “Evening with Emily’s Entourage” was hosted on December 7th and we cannot begin to put into words how magical it was. We... Read More
We will use this information to send you news and updates about Emily’s Entourage and provide opportunities to support our research.