Emily Speaks at Vertex Pharmaceuticals for Rare Disease Week
For Rare Disease Week, Emily will be taking the message of Emily’s Entourage to Vertex Pharmaceuticals in Boston, Massachusetts. She will use her story as... Read More
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
CLINICAL TRIALS
Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient.
PATIENT DATABASE
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Recap of Our 2015 Evening with Emily’s Entourage Gala
We’re up in the sky. We’re on cloud nine. We’re over the moon, and it’s all because of that incredible, unforgettable evening on December 5,... Read More
Inaugural Emily’s Entourage Champions exceed $30K in funds raised for Cystic Fibrosis!
It all started with a small idea to expand our reach and help raise more funds… Emily’s Entourage has so many ambassadors around the country... Read More
Happy 31st birthday, Emily!
Birthdays can be bittersweet around here as we love the chance to celebrate Emily and surround her with love and laughter, but we also simultaneously... Read More