High Risk During a Pandemic: The CF Community’s Superpower
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
CLINICAL TRIALS
Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient.
PATIENT DATABASE
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Mixed Feelings: Living with Rare CF Mutations
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
All Hands On Deck: It is Cystic Fibrosis Awareness Month
While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know for sure. May... Read More
Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak
On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a result of Cystic... Read More