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30 Apr 2025

Lines of Connection, Paths to Progress: This CF Awareness Month, It’s Time to #CrossOutCF

Cystic Fibrosis Awareness Month 2025 is here, and at Emily’s Entourage (EE), we’re celebrating the unwavering spirit of the cystic fibrosis (CF) community. This month is fueled by grit, courage, and the relentless “no-quit” attitude that defines the CF community, driving us toward one clear, unyielding goal: a world where no one has to live with CF.

Each year, EE embraces the theme “Cross Out CF”—a bold commitment to finish the job and ensure that every person with CF has a lifesaving therapy of their own. No exceptions. No excuses. This year, we’re going further, focusing on the power of lines as vital connections within the CF community’s rich mosaic of perspectives and experiences, and as pathways of progress towards our shared goal. While the CF community shares a defective gene, it also defines itself by its resilience, ingenuity, and unshakable determination to build a future free from CF.

A Month of Connection, Perspective, and Possibility

Throughout May, we’re diving into what it truly means to be part of the CF community—celebrating varied, nuanced, and powerful stories, from a range of global perspectives. This month is about amplifying the lived experiences that shape the CF community. We’ll explore how CF intersects with identity, innovation, and connection while confronting the barriers that remain. With one unwavering mission—to cross out CF for good—we’ll elevate the voices of individuals and families whose stories fuel this movement forward.

This is a celebration of our collective strength, diverse perspectives, and the relentless quest for a future free from CF.

  • Of those with CF who turn their personal challenges into action, leading the charge by advocating for themselves and the CF community.
  • Of the dreamers and the doers who create beauty in the face of adversity.
  • Of the endlessly driven parents who move mountains to give their child everything she needs to thrive—no matter what it takes.
  • Of the researchers driven by personal loss, who dedicate their lives to turning the latest science into innovative therapies.

And of those in the final 10%, who are courageously holding on to hope and moving forward while waiting for their breakthrough.

Each of these voices is the heartbeat of this movement. These are the people that drive us. These are the stories that inspire us. This is the community that is banding together to create a future where we cross out CF for 100% of the CF community—with nobody left behind.

How You Can Get Involved

This month is about action—because progress doesn’t happen on its own. Every post you share, every story you tell, and every conversation you spark brings us closer to a future where CF is history.

  • Stay Connected: Follow along on social media (Facebook | Instagram | LinkedIn | X) and sign up for our EE Insider newsletter as we spotlight a new aspect of life with CF each day—from personal journeys and advocacy efforts to groundbreaking science and the power of community.
  • Join the Conversation: Your story matters. Share your experience with CF using #CrossOutCF and help us show the world why breakthroughs can’t wait.
  • Take Action: Donate, advocate, spread the word—every action, no matter how big or small, gets us one step closer to the finish line.

Creating a future where we #CrossOutCF depends on accelerating lifesaving breakthroughs—because too many are still waiting. Every story, every perspective, every voice in this community is a line that connects us, lifts us, and propels us forward. Together, let’s connect the dots, let’s forge the lines, let’s draw the network that pushes science forward faster and leads to lifesaving breakthroughs for 100% of the CF community.

Be loud. Be relentless. Be the connection that drives progress. Let’s cross out CF together.

Thank You to Our CF Awareness Month Sponsors

We want to thank our generous 2025 Cystic Fibrosis Awareness Month campaign sponsors! Your support means the world to us as we work to “Cross Out CF” and rewrite the story of this disease, once and for all.

cf awareness, CF Research, cfa, cystic fibrosis, cystic fibrosis awareness month
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The opinions stated by our guest contributors reflect the experiences and thoughts of the author alone. Our publication of these pieces does not reflect Emily’s Entourage’s endorsement or suggest a position on those opinions. The content on this site is for informational or educational purposes only and does not substitute professional medical advice or consultations with healthcare professionals.
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