For Rare Disease Week, Emily will be taking the message of Emily’s Entourage to Vertex Pharmaceuticals in Boston, Massachusetts. She will use her story as a patient with a rare... Read More
We’re up in the sky. We’re on cloud nine. We’re over the moon, and it’s all because of that incredible, unforgettable evening on December 5, 2015 when Emily’s Entourage —... Read More
It all started with a small idea to expand our reach and help raise more funds… Emily’s Entourage has so many ambassadors around the country who are true trailblazers. We... Read More
Birthdays can be bittersweet around here as we love the chance to celebrate Emily and surround her with love and laughter, but we also simultaneously are forced to face the... Read More
2015 was MAJOR. So insanely major that the only way to sum it up was with a gold old top 10 list and an awesome video of highlights at the end. So... Read More
Nick Dinges, The Go-To Guy for…. Everything EE Over the coming months, we plan to feature a series of blog posts highlighting some of our most integral Emily’s Entourage team... Read More
Ever since the very beginning of Emily’s Entourage- actually, even before there was an Entourage, hot air balloons have been a special symbol for the Kramer-Golinkoff family. You have probably... Read More
Emily’s Entourage convened a Key Opinion Leaders Meeting in Philadelphia on September 9, bringing together world-class scientists to brainstorm new, out-of-the-box approaches to treat Emily’s rare CF mutation and those... Read More