About The Champions Campaign The Emily’s Entourage Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the quest to cure CF. The campaign has run... Read More
Chloé Plissonneau-Duquene, Emily’s biggest fan across the Atlantic Welcome to “Humans of EE”, our riff on the photography project and phenomenon “Humans of New York“. Humans of EE highlights the... Read More
Can you hear that? That’s the sound of silos shattering… obstacles crumbling… the limits of what’s possible smashed to pieces — and it’s still reverberating from the evening of December... Read More
Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be than among other esteemed rare disease stakeholders at... Read More
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is EE superstar Brandon Faske,... Read More
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Mallory Smith, a 23-year-old writer living... Read More
We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with Emily to give our Entourage a window into... Read More
Today’s guest blog post was written by Emily and adapted from a speech delivered at the Global Genes and Penn Orphan Disease Center’s Rare Patient Advocacy Symposium. Like so many... Read More