About Emily’s Entourage

What started as a small-scale fundraiser in the Kramer-Golinkoff’s living room has turned into so much more. Since 2011, we have:

• Raised $22.1 million to support lifesaving research and drug development for the final 10% of people with CF.
• Awarded 42 research projects to top investigators around the world and secured over $73.15 million in follow-on funding.
• Deployed a venture philanthropy model to spin out a clinical-stage CF gene therapy company.
• Played a pivotal role in advancing five research projects to clinical stage. 
• Developed 353+ phages that have treated 106 people with antibiotic-resistant infections, including 50+ with CF.
• Expanded our global Clinical Trial Connect (CTC) patient database, which speeds clinical trial recruitment by nearly 50%, with participants in 46 states and 52 countries.
• Launched the Gene Therapy Consortium, which brings together clinical-stage mRNA and genetic therapy companies to tackle industry-wide challenges and opportunities.

From the lab to trials and through regulatory approvals, we are teeing up all steps of the drug development process so that the moment a therapy is ready, it reaches people with CF in record speed. 

We believe that change starts with one person and one community that dreams of a better future and has the audacity to believe that that future is up to them. Join us on our mission to speed lifesaving breakthroughs and a cure for the final 10% of people with CF. Together, we can make a difference!

“We rejected the status quo, we defied the naysayers, we dreamt big, and ran with it … It goes to show that you don’t have to be a billionaire or a biologist or a big-time institution to make a real, measurable difference in the world.” – Emily Kramer-Golinkoff, co-founder, Emily’s Entourage