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  • Home
  • Emily’s Story
  • About Us
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      • Research Inquiries
      • Research Resources
  • Events
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    • EE in the News
    • Press Releases
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  • Take action
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About Emily’s Entourage

What started as a small-scale fundraiser in the Kramer-Golinkoff’s living room has turned into so much more. With dozens of research grants funded; $52.3M in follow-on funding secured; a cystic fibrosis (CF) gene therapy company launched, acquired, and advancing two gene therapy candidates towards clinic; and a clinical trial matchmaking program developed to help speed clinical trial recruitment; Emily’s Entourage (EE) has come a long way since those early days!

From the lab to trials and through regulatory approvals, we are teeing up all steps of the drug development process so that the moment a therapy is ready, it reaches people with CF in record speed. 

We believe that change starts with one person and one community that dreams of a better future and has the audacity to believe that that future is up to them. Join us on our mission to speed lifesaving breakthroughs and a cure for the final 10% of people with CF. Together, we can make a difference!

“We rejected the status quo, we defied the naysayers, we dreamt big, and ran with it … It goes to show that you don’t have to be a billionaire or a biologist or a big-time institution to make a real, measurable difference in the world.” – Emily Kramer-Golinkoff, co-founder, Emily’s Entourage

Our Mission

Joining the fight against Cystic FibrosisFast Breakthroughs for Cystic Fibrosis 

Emily’s Entourage accelerates research and drug development for the final 10% of people with cystic fibrosis (CF). By providing critical leadership and coordination, Emily’s Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite lifesaving treatments and a cure for the final 10% who are waiting with bated and fading breath.

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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

Tax ID #45-3768161

Emily's Entourage
Website Managed By: Strategic Websites
  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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