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Tag

research

The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery

27 Mar 2025
For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough...
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Accelerating Gene Therapy Delivery for Cystic Fibrosis: Emily’s Entourage to Convene Experts at 2025 Symposium

20 Feb 2025
Philadelphia, PA—February 20, 2025—Emily’s Entourage (EE), a pioneering nonprofit accelerating research for the final 10% of the cystic fibrosis (CF) community, is...
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Emily’s Entourage Officially Launches Global ‘CF Clinical Trial Connect’ to Drive Breakthrough Therapies for the Underserved CF Community

12 Sep 2024
New, upgraded platform connects people with cystic fibrosis worldwide with new clinical trial opportunities, accelerating development of therapies for those who remain...
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Emily’s Entourage Awards $1,487,500 Research Grant to Launch Pioneering Phage Clinical Trial for Combatting CF Infections

13 Jun 2024
The funded project, led by research teams at the University of California, San Diego and the University of Pittsburgh, aims to advance...
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Emily’s Entourage Co-founder Awarded 2024 Leadership in Personalized Medicine Award by the Personalized Medicine Coalition

12 Jun 2024
Emily Kramer-Golinkoff, an individual with cystic fibrosis and co-founder of Emily’s Entourage, is the winner of this year’s Award for Leadership in...
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Emily’s Entourage Awards $858,932 in Inaugural Collaborative Research Grant for Novel Approach to Targeted Airway Delivery in Cystic Fibrosis Treatments

29 May 2024
Through the newly-awarded funding from EE, research teams from the University of Iowa, CHOP, and the University of Rochester seek to overcome...
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Q&A with EE’s First-Ever Chief of Staff, Genevieve Mack

28 Mar 2024
We are thrilled to share that Genevieve Mack has officially joined Emily’s Entourage (EE) as our first-ever Chief of Staff. In a...
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Q&A with EE’s First-Ever Chief Scientific Officer, Dr. Chandra Ghose

10 Feb 2022
We are so excited to announce that Chandra Ghose, PhD, has joined Emily’s Entourage (EE) as our first-ever Chief Scientific Officer. We...
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Training for a Cure: CF Researcher Raises Funds for EE

23 Aug 2019
Emily’s Entourage (EE) is incredibly honored to have a group of scientists dedicated to accelerating research and drug development for nonsense mutations...
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Emily's Entourage Nonprofit Overview and Reviews on GreatNonprofits
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

Tax ID #45-3768161

Emily's Entourage
Website Managed By: Strategic Websites
  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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