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Press Releases

15 Dec 2022

Emily’s Entourage Announces Addition of Maria P. Limberis, PhD, to its Scientific Advisory Board

In her career dedicated to airway gene therapy research, Dr. Limberis was the first to demonstrate that lentiviral-based gene therapy “corrects” the CF airway defect in an animal model of the disease. Emily’s Entourage (EE), an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for the final 10% of people with cystic fibrosis (CF), including those with nonsense...
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11 Nov 2022

Dr. Jennifer Taylor-Cousar Announced as Recipient of Emily’s Entourage 2022 Trailblazer Award

Presented to Dr. Taylor-Cousar for her passionate commitment to the final 10% of the cystic fibrosis community that do not benefit from lifesaving mutation-targeted therapies Lower Merion, PA — Nov. 11, 2022 — Emily’s Entourage (EE), an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for the final 10% of people with cystic fibrosis (CF), including those with...
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03 Nov 2022

Emily’s Entourage Funds Collaborative Research Project, Connecting Labs in the U.S. and the Netherlands to Explore Cutting-Edge ACE-tRNA Technology

Work from the lab of Jeffrey Beekman, PhD, and Sacha Spelier at the University Medical Center Utrecht will be tested in the lab of John D. Lueck, PhD, at the University of Rochester Medical Center The pre-clinical research project aims to leverage ACE-tRNA technology to produce a fully functional cystic fibrosis transmembrane conductance regulator (CFTR) protein to correct nonsense mutations of CF...
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03 Nov 2022

Emily’s Entourage Awards Research Grant to Team Exploring Novel Gene Editing Technology

The project will focus on leveraging the gene editing technology, called prime editing, to correct specific CFTR mutations in a safe and efficient manner and will explore the possibility to deliver this editing cargo through virus-like particles (VLP) Lower Merion, PA — Nov. 3, 2022 — Emily’s Entourage (EE), an innovative 501(c)3 foundation that accelerates research for new treatments and a cure...
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02 Nov 2022

Emily’s Entourage Awards $220,000 to Advance the Development of Phage Therapies as a Means to Treat Multidrug-Resistant NTM Infections

The project seeks to expand the use of phage therapy as a treatment for cystic fibrosis patients with nontuberculosis mycobacterium (NTM) infections Lower Merion, PA — Nov. 2, 2022 — Emily’s Entourage (EE), an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for the final 10% of people with cystic fibrosis (CF), including those with nonsense mutations, today...
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02 Nov 2022

Emily’s Entourage Awards $220,000 to University of Iowa Laboratory to Advance Research Into Correcting Nonsense Mutation CFTR Function

The project introduces novel systems for correcting the cystic fibrosis transmembrane conductance regulator (CFTR) protein in the airways of people with nonsense mutations of CF Nov. 2, 2022 — Emily’s Entourage (EE), an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for the final 10% of people with cystic fibrosis (CF), including those with nonsense mutations, today announced...
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29 Sep 2022

Emily’s Entourage Gets Creative to Host 11th Annual Gala in a Post-Covid World

The event will celebrate 11 years of impact, including more than $10 million raised to speed breakthrough research for cystic fibrosis  Co-Founder and family — in strict medically-related quarantine since March 2020 — to attend and broadcast annual speech live from secluded tent on-site Lower Merion, PA (Sept. 29, 2022) — How does a health-based nonprofit, led by a woman with advanced-stage lung...
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19 Sep 2022

Patrick Harrison, PhD, Joins Emily’s Entourage Scientific Advisory Board

As Head of the Gene Editing Lab at University College Cork, Ireland, Dr. Harrison led the group that reported the first successful correction of a CFTR mutation in a cell model of cystic fibrosis Lower Merion, PA — Sept. 19, 2022 — Emily’s Entourage (EE), an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for the final 10%...
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

Tax ID #45-3768161

Emily's Entourage
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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