Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
At Emily’s Entourage (EE), we realize that what drives disease progression and mortality in people with cystic fibrosis (CF) — and what threatens their ability... Read More
Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day on February 28.... Read More
Back in-person for the first time since 2019, the invite-only reception brought together members of the cystic fibrosis (CF) community to celebrate EE’s achievements to... Read More