The Stars Aligned at the 2023 Evening with Emily’s Entourage: True North
We are truly seeing stars! On Saturday, October 14, 2023, Emily’s Entourage (EE) held our annual Evening with Emily’s Entourage gala, “True North,” and raised... Read More
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
CLINICAL TRIALS
Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient.
PATIENT DATABASE
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Three New Phages Developed for Nontuberculosis Mycobacteria in People with CF
Pulmonary bacterial infections, specifically drug-resistant infections, drive disease progression and mortality in people with cystic fibrosis (CF). Among the worst are non-tuberculosis mycobacterium (NTM) infections,... Read More
Unpacking the Promise of Gene-Based Therapies: Insights from EE’s Gene Therapy Town Hall
On August 22, 2023, Emily’s Entourage (EE) hosted a virtual town hall meeting that delved into the exciting world of gene-based therapies for cystic fibrosis... Read More
My Journey to Diagnosis as Someone Who Doesn’t Look Like the “Typical” CF Patient
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of... Read More