Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies, including those with nonsense mutations of CF.
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
EE maintains a patient registry of individuals with CF who are genetically ineligible for or do not benefit from existing CFTR modulator therapies to inform them about relevant clinical trials.
First and foremost, we would like to thank everyone for their unbelievable, overwhelming and awe inspiring level of support. We have truly been blown away... Read More