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Fast Breakthroughs for Cystic Fibrosis

Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.

GRANTS WE FUND

EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.

LEARN MORE

CLINICAL TRIALS

Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient. 

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PATIENT DATABASE

Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.

JOIN NOW

Recent Blog Posts

PharmaTimes Magazine Q+A with Emily

23 Oct 2014
“Everyone Deserves A Deep Breath” Interview originally published in PharmaTimes Magazine and available here Emily Kramer-Golinkoff was six weeks old when she was diagnosed with...
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Join Team EE in the 2014 Philadelphia Marathon

21 Sep 2014
Emily’s Entourage is thrilled to be an official charity partner of the 2014 Gore-tex Philadelphia Marathon! We still have a few spots open on the team...
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Where in the World is Emily of Emily’s Entourage?

18 Sep 2014
Where in the world is Emily?? That’s the question we were asking ourselves all week! It seems like lately there’s never a dull moment, and...
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How Emily’s CF Journey Changed My Perspective on Health

12 Aug 2014
We are thrilled to share a blog post from Bea Abbott, a close friend of Emily’s and the entire Kramer-Golinkoff family, as well as a...
Read More
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
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