EE Launches Organoid Screening of Cystic Fibrosis Nonsense Mutation
Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands.... Read More
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
CLINICAL TRIALS
Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient.
PATIENT DATABASE
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
From Arizona to Alabama: Raising Awareness For Rare Disease Week
Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer... Read More
Fall in LovEE with Emily’s Entourage: Meet Sarena
Our #FallinLovEE with EE Series continues this month, this time with longtime EE friend, volunteer, and go-to gal, Sarena Snider. As Sarena recounts how she... Read More
Happy 33rd Birthday, Emily!
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest... Read More
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