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09 Jan 2012
2

Happy Birthday Emily!

Hi all!

Today is a very special day for us at Emily’s Entourage. Today is Emily’s 27th birthday! First and most importantly, we want to wish Emily a very happy birthday.

Birthday are particularly meaningful in the CF world. Over the past 60 years, there have been major advancements in CF treatment that have allowed people with CF to live longer and better. Whereas in the 1950s, children with CF rarely made it to elementary school, today the projected life expectancy for someone with CF is in the mid-30s. We want to celebrate these advancements wholeheartedly, but also remember that mid-30s is still far too young. With each birthday and especially as Emily turns 27 today, we are reminded of just how close – and premature – mid-30s really is.

So today we invite you to join us in celebrating Emily’s birthday and the CF advancements that have allowed her to live 27 years (and counting) so fully! We ask that you wish Emily a happy birthday by posting about Emily’s Entourage on Facebook and encouraging your friends to “LIKE” the Emily’s Entourage page to help us reach our goal of 1,000 fans. On days like today, we are reminded more than ever about the importance of of our cause and why we must keep on fighting to find a cure.

We want Emily to have dozens upon dozens of future “happy birthdays” and we need your help to make our dream a reality.

From all of us at Emily’s Entourage, thank you as always for your support and happy birthday Emily – we love you!

-Emily’s Entourage

 

 

 

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2 Responses

  1. Michelle Berman
    January 9, 2012 at 9:14 am
    Reply

    Happy 27th Birthday sweet, beautiful, smart, courageous Emily! You are an inspiration to us all, to never ever give up and always have hope…because as you yourself and Emily’s Entourage continue to prove… there is hope in living with CF AND finding a cure . What an impact you, your family and your friends continue to make in the fight for a cure! Wishing you a special day filled with lots of love joy and never-ending hope.. 🙂 xoxo Michelle.

  2. Diane Mustin
    January 9, 2012 at 6:49 pm
    Reply

    Happy Birthday Emily! You and your friends are doing amazing work and I love watching Emily’s Entourage grow. My wish is for you to be celebrating your 72nd birthday one day. You go girl!
    love, Diane

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  • Home
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  • About Us
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    • Our Approach
    • Our Impact
      ▼
      • 2019 Impact Report
    • Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Publications
    • Patient Registry: CF Nonsense Mutation
    • For Researchers
      ▼
      • Research Resources
      • Research Inquiries
      • Funding Opportunities
  • Events
    ▼
    • Signature Events
      ▼
      • 2020 Year End Campaign
      • EENY: LIVE! Virtual Benefit
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
      ▼
      • EE Launches First Virtual Benefit
      • Spirovant Acquisition
      • FDA Approval of Trikafta
    • Awards
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  • Take action
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    • Donate to Emily’s Entourage
      ▼
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