Emily's Entourage

28 Mar 2018

EE lance le dépistage par organoïdes de la mutation non-sens de la mucoviscidose

Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands. This grant reflects a new...

08 mars 2018

De l'Arizona à l'Alabama : Sensibilisation à la Semaine des maladies rares

Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer than 200,000 people worldwide. With...

13 Fév 2018

Tombez amoureux de l'Entourage d'Emily : Rencontrez Sarena

Our #FallinLovEE with EE Series continues this month, this time with longtime EE friend, volunteer, and go-to gal, Sarena Snider. As Sarena recounts how she fell in love with Emily’s...

07 Jan 2018

Joyeux 33e anniversaire, Emily !

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is our treasured EE...

22 Déc 2017

Récapitulation : Le gala 2017 de l'Entourage d'Emily

We are still floating back to earth from an otherworldly, dazzling evening that was the 2017 Evening With Emily’s Entourage! This gala—our sixth—was truly breathtaking. Anthropologie, the official 2017 Decor...

04 Déc 2017

L'EE accorde $1,4 million d'euros à la recherche sur les mutations non-sens de la mucoviscidose

Emily’s Entourage is proud to announce that five research grants were awarded to a dream team of investigators from around the world, amounting to a total of $1.4 Million over two...

28 Nov 2017

Voici les champions de l'Entourage d'Emily 2017

Cue the Rocky Theme song— because Philadelphia’s finest champions are only weeks away from hitting the ring. The Emily’s Entourage 2017 Champions Campaign has made it’s way back to Philadelphia...

10 octobre 2017

Tomber amoureux de l'Entourage d'Emily : Rencontre avec Pam

As sweatshirts and boots make their way out of the backs of our closets, and the leaves begin to change color, we are reminded it’s officially fall in Philadelphia,...

20 Sep 2017

Un nouvel outil dans la boîte à outils : L'entourage d'Emily crée un organoïde de mutation non-sens

Emily’s Entourage has always operated with a sense of urgency and refusal to accept the status quo for Cystic Fibrosis (CF), guided in large part by Emily and her family’s...

20 Juin 2017

Emily intervient à la convention internationale BIO

Wondering where in the world is Emily this week? She can be found in sunny San Diego, CA, where she will be participating in two sessions for the 2017 BIO...

16 Juin 2017

L'EE fournit un financement de départ à une société de thérapie génique de la fibrose kystique

We are proud to announce that Emily’s Entourage has provided seed funding to launch Talee Bio, a novel gene therapy company focused on developing revolutionary treatments and a cure for...

01 Juin 2017

Récapitulatif : Soirée exclusive 2017 avec l'entourage d'Emily à New York (EENY)

“This Entourage. All of you. You are the force that’s fueling the fight of a lifetime. And tonight, we have the chance to obliterate CF.” – Emily’s EENY speech It’s...

15 Mai 2017

10 Ways You Can Help EE

We often get asked the question from new or long time Entourage members, “how can I help?” With May being CF Awareness Month, we wanted to highlight how you could help...

05 Mai 2017

Eat A Cookie, Find A Cure

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is longtime EE treasure Julie...

04 Mai 2017

Top 5 Reasons Your Support Is Making EE Unstoppable

Emily’s Entourage is the only non-profit organization dedicated to fast-tracking research and drug development for rare, nonsense mutations of Cystic Fibrosis. Here’s why your support is making this Entourage unstoppable:...

02 Mai 2017

Ready or Not… It’s CF Awareness Month

It’s here, it’s here… our favorite month of the year! May is National Cystic Fibrosis Awareness Month and in true Emily’s Entourage style, we are going BIG to honor the...

14 Avr 2017

Un aperçu de la vie avec une maladie chronique

Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind of legendary in the chronic illness world for...

27 mars 2017

Coalition pour la médecine personnalisée - Séance d'information et de lobbying à l'intention des membres du Congrès

Ms Kramer-Golinkoff goes to Washington! Waving hello to the White House she visited a few times last year, Emily headed to the Hill last week to lobby Senators, their staff...

05 Mar 2017

Découvrez les champions de l'Entourage de l'Emily de New York 2017

About The Champions Campaign The Emily’s Entourage Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the quest to cure CF. The campaign has run...

Blog

EE lance le dépistage par organoïdes de la mutation non-sens de la mucoviscidose

De l'Arizona à l'Alabama : Sensibilisation à la Semaine des maladies rares

Tombez amoureux de l'Entourage d'Emily : Rencontrez Sarena

Joyeux 33e anniversaire, Emily !

Récapitulation : Le gala 2017 de l'Entourage d'Emily

L'EE accorde $1,4 million d'euros à la recherche sur les mutations non-sens de la mucoviscidose

Top Ten Questions (and Answers!) About This Year’s Evening with Emily’s Entourage Gala

Voici les champions de l'Entourage d'Emily 2017

Tomber amoureux de l'Entourage d'Emily : Rencontre avec Pam

Un nouvel outil dans la boîte à outils : L'entourage d'Emily crée un organoïde de mutation non-sens

Emily intervient à la convention internationale BIO

L'EE fournit un financement de départ à une société de thérapie génique de la fibrose kystique

Récapitulatif : Soirée exclusive 2017 avec l'entourage d'Emily à New York (EENY)

10 Ways You Can Help EE

Eat A Cookie, Find A Cure

Top 5 Reasons Your Support Is Making EE Unstoppable

Ready or Not… It’s CF Awareness Month

Un aperçu de la vie avec une maladie chronique

Coalition pour la médecine personnalisée - Séance d'information et de lobbying à l'intention des membres du Congrès

Découvrez les champions de l'Entourage de l'Emily de New York 2017

S'abonner à notre blog