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07 Apr 2013
0

EExtraordinary Donors: Why I support Emily’s Entourage

Emily’s Entourage has the most generous, thoughtful and dedicated donors! To show our gratitude, we want to shine the spotlight on YOU, the incredible entourage. In this blog series, called EExtraordinary Donors, we learn what drives our wonderful donors to support Emily’s Entourage and the fight to cure Cystic Fibrosis.

Meet EExtraordinary Donor, “Susanna from Allentown, PA.”

What’s your connection to Emily’s Entourage?

Emily has been a lifelong inspiration for me. I met her when she was three years old and although we have not seen each other in years, it is a joy to watch from afar to see the amazing woman she has become. I am so honored to have shared a tiny bit of her life and will always feel a connection. I am very proud of Emily and of her family who obviously surrounds her with love and light.

Why do you give to Emily’s Entourage?

With high hope that fewer children will have to endure this heartbreaking, painful and horrid disease.

What impact do you hope your gift will have?

I know it is a drop in the pan, but we will continue to support EE in any way we can!

Thank you Susanna for being one of our amazing EE donors and friends!

Next, we want to shine the light on you! Let us know why you support Emily’s Entourage by filling out this quick survey.

Thank you!

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EE talks to BBYO IC 2013 and School for Ethics and Global Leadership
May is Cystic Fibrosis Awareness Month

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Merion Station, PA 19066

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Emily's Entourage
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • Our Mission
    • Our Approach
    • Our Impact
      ▼
      • 2019 Impact Report
    • Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Publications
    • Patient Registry: CF Nonsense Mutation
    • For Researchers
      ▼
      • Research Resources
      • Research Inquiries
      • Funding Opportunities
  • Events
    ▼
    • Signature Events
      ▼
      • 2020 Year End Campaign
      • EENY: LIVE! Virtual Benefit
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
      ▼
      • EE Launches First Virtual Benefit
      • Spirovant Acquisition
      • FDA Approval of Trikafta
    • Awards
    • Videos
  • Take action
    ▼
    • Donate to Emily’s Entourage
      ▼
      • Donate Now
      • Other Ways to Give
    • Get Involved
      ▼
      • Sign Up for Updates
    • Fundraise
      ▼
      • Start Your Fundraiser
      • What You Can Do
    • Shop EE
  • Blog
  • Contact Us