There is nobody with a deeper vested interest in fast progress for the final 10% of the cystic fibrosis (CF) community than those living with the disease and the people who love them. The CureFinders Crew (CF Crew) was created with you in mind — to provide a space where the CF community can come together in support of Emily’s Entourage’s (EE’s) mission to speed lifesaving research and drug development for the final 10% of the CF community, including those with nonsense mutations of CF.
Never underestimate your voice, your brain, your creativity, your ideas, and your power. They move mountains. – Emily Kramer-Golinkoff, co-founder, Emily’s Entourage
Why Join the CF Crew?
Emily’s Entourage believes that NO ONE should be left behind and every single person with CF deserves realistic hope for a future and deep breath. As part of the CF Crew, you can help us elicit much-needed change for the final 10% by sharing your story and engaging your network. You have the power to make a difference and help fund our aggressive investment in research and drug development, getting us closer to our shared goal of fast breakthroughs for 100% of the CF community — nobody left behind.
Who Can Participate?
The CF Crew is open to anyone who has a connection to CF — whether you’re part of the final 10% or part of the 90% that has experienced, firsthand, the life-changing impact of a mutation-targeted therapy.
You will be joining a special group of change-making, mountain-moving CF families that are working to bring about fast, sweeping advances for the final 10%. And, as you know more intimately than anyone, that progress cannot possibly come soon enough!