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  • Emily’s Story
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      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
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      • Scientific Advisory Board
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      • Leadership Team
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      • Venture Philanthropy Investments
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Press

March 16, 2022
Patients Not Eligible for Modulator Therapy Speak Out in Survey

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March 8, 2022
Emily’s Entourage Grant Targets Nonsense Mutations

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January 26, 2022
Podcast: Using her voice to fight for her community—and herself

LISTEN HERE

December 1, 2021
You Can Join Emily’s Entourage in Its Fight Against Cystic Fibrosis

WATCH HERE

October 12, 2021
PA Rare Disease Organization Leader Profile: Emily Kramer-Golinkoff

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June 29, 2021
Interview with Emily Kramer-Golinkoff of Emily’s Entourage

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February 10, 2021
Cystic Fibrosis patients fight for higher spot in coronavirus vaccine line

WATCH HERE

February 4, 2021
Having an underlying health condition doesn’t mean we move up the COVID-19 vaccine line

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December 15, 2020
Emily Kramer-Golinkoff talks with Kathy Romano about EE’s virtual campaign to help find a cure for cystic fibrosis

LISTEN HERE

July 29, 2020
Bacteria-eating viruses could provide a route to stability in cystic fibrosis

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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

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  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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