Press
March 8, 2022
Emily’s Entourage Grant Targets Nonsense Mutations
January 26, 2022
Podcast: Using her voice to fight for her community—and herself
December 1, 2021
You Can Join Emily’s Entourage in Its Fight Against Cystic Fibrosis
October 12, 2021
PA Rare Disease Organization Leader Profile: Emily Kramer-Golinkoff
June 29, 2021
Interview with Emily Kramer-Golinkoff of Emily’s Entourage
February 10, 2021
Cystic Fibrosis patients fight for higher spot in coronavirus vaccine line
February 4, 2021
Having an underlying health condition doesn’t mean we move up the COVID-19 vaccine line
December 15, 2020
Emily Kramer-Golinkoff talks with Kathy Romano about EE’s virtual campaign to help find a cure for cystic fibrosis
July 29, 2020
Bacteria-eating viruses could provide a route to stability in cystic fibrosis
June 12, 2020
State of patient centricity 2020: Advancing from patient-first intentions to true co-creation