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Home
Emily’s Story
About Us
About Emily’s Entourage
Our Approach
Our Impact
2021 Impact Report
2020 Impact Report
2019 Impact Report
About Cystic Fibrosis
Meet Our Leadership
Scientific Advisory Board
Board of Directors
Leadership Team
Partner Organizations
Research
Areas of Focus
Awarded Grants
Funding Opportunities
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Press
July 6, 2015
Montco Woman to be honored at White House
READ MORE
March 23, 2015
Tulane Keeps Up the Fight Against Cystic Fibrosis
READ MORE
February 27, 2015
World Rare Disease Day: A Call For Earlier Diagnosis And Treatment
READ MORE
February 6, 2015
Focus on Rare Diseases is Common at Penn Medicine
READ MORE
January 29, 2015
Emily’s Entourage Shows Up in Force
READ MORE
January 25, 2015
Emily’s Entourage ‘birthday’ gala sets new records, spurs CF research
READ MORE
November 14, 2014
Everyone Deserves a Deep Breath
READ MORE
September 16, 2014
Patient Story Kicks off Health IT Week
READ MORE
September 15, 2014
A Patient Perspective: How Technology Has Transformed My Health and Care
VIEW VIDEO
August 1, 2014
A Lesson in Participatory Research for a Rare Mutation of Cystic Fibrosis
READ MORE
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Emily’s Story
About Us
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About Emily’s Entourage
Our Approach
Our Impact
▼
2021 Impact Report
2020 Impact Report
2019 Impact Report
About Cystic Fibrosis
Meet Our Leadership
▼
Scientific Advisory Board
Board of Directors
Leadership Team
Partner Organizations
Research
▼
Areas of Focus
Awarded Grants
Funding Opportunities
▼
Venture Philanthropy Investments
Collaborative Grants
Translational Grants
Patient Registry
Clinical Trial Matchmaking Program
The Final 10% Survey
Publications
For Researchers
▼
Research Inquiries
Research Resources
Events
▼
Events & Activities
Press & Media
▼
EE in the News
Press Releases
Awards
Videos
Take action
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Donate
Get Involved
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