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In this Report
  • Letter From Our Co-Founders
  • Grants
  • Venture Philanthropy
  • Clinical Trial Recruitment
  • Advocacy
  • Spreading Awareness
  • Raising Funds
  • Supporters
  • Leadership

Letter From Our Co-Founders

Dearest Entourage,

2021 was a momentous year. It marked Emily’s Entourage’s (EE) 10th anniversary. It’s a milestone that carried special meaning for us as the number ten reflects our mission: to create lifesaving breakthroughs for the final 10% of the cystic fibrosis (CF) community that do not benefit from existing mutation-targeted therapies.

In a beautiful confluence of kismet and commitment, 2021 was also the year that we hit the $10 million all-time fundraising mark — the most perfect demonstration of the dedication, conviction, and generosity of our almighty Entourage!

This year, we realized that our impact, and the potential scale and scope of future work for those who need us most, is exponentially greater than we had ever dreamed possible.

Back in 2011 as we dreamt up EE on our living room floor, we could have never imagined where we would find ourselves ten years later. With 22 research grants funded, $37.6+ million in follow-on funding secured, and an EE-founded CF gene therapy company moving towards clinic, we have come a long way in the past decade. EE has emerged as a worldwide leader for the final 10% of the CF community — all thanks to you.

These achievements are worthy of celebration, but we’ve never been inclined to rest on our laurels. As a patient- and family-led research organization, one of our greatest assets is that we feel the urgency of our mission every single minute of every day — and that’s the force that propels us to charge forward.

Of course, none of this would be possible without you.

Thank you for helping us transform big ideas into bold action and results that matter. Thank you for inspiring us, for believing in us, and for pushing us forward on this critical quest. Though we started “small,” we’ve always punched above our weight.

Ten years of progress. Ten percent to go.

With profound gratitude,
Liza and Emily

Photo credit: Cheyenne Gil

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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

Tax ID #45-3768161

Emily's Entourage
Website Managed By: Strategic Websites
  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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