Por que gostamos de balões de ar quente?
Ever since the very beginning of Emily’s Entourage- actually, even before there was an Entourage, hot air balloons have been a special symbol for the Kramer-Golinkoff family. You have probably... Leia mais
Blogue
O "encontro de mentes" da EE impulsiona novas abordagens ousadas para a terapêutica da FC
Emily’s Entourage convened a Key Opinion Leaders Meeting in Philadelphia on September 9, bringing together world-class scientists to brainstorm new, out-of-the-box approaches to treat Emily’s rare CF mutation and those... Leia mais
Tão Verdadeiro / Tão Falso: Um guia lúdico para quebrar mitos sobre o evento de gala Evening with Emily's Entourage
In case you haven’t noticed, we’re pretty excited that there is now less than one month until our annual Evening with Emily’s Entourage Gala on Saturday, December 5th! We know... Leia mais
9 lições que mudaram sua vida com a Stanford Medicine X
A couple weeks ago, I had the privilege of speaking at Stanford Medicine X and serving as an ePatient advisor to a new class of ePatients, individuals who are empowered... Leia mais
Faces da FC: um aniversário especial
Here at Emily’s Entourage we are dedicated to bringing you fresh content full of honesty, passion, and information. With excitement, we present the first in a new blog series, “Faces... Leia mais
Emily's Entourage assumirá a Maratona da Filadélfia de 2015 pelo segundo ano
In the cystic fibrosis (“CF”) community, the simple, often involuntary, act of taking a breath resonates deeply. Among other symptoms, CF patients deal with the buildup of mucus in their... Leia mais
Vote na Emily para ser a heroína da saúde da Filadélfia
Our very own Emily has qualified as a semifinalist in the “Health Hero Challenge” by Philadelphia Magazine. And the best news? It’s up to US to win this prestigious honor –... Leia mais
Anunciando nossa campanha Emily's Entourage Champions!
It’s been an exciting and groundbreaking year for Emily’s Entourage and we could not have done it without all of you! To highlight our amazing supporters, we are launching a... Leia mais
Emily retorna à Stanford Medicine X como palestrante e consultora
This week, Emily is thrilled to be back as a featured speaker at the annual Stanford Medicine X conference – this time not only as a speaker and panelist, but... Leia mais
Um poema inspirado
Although we may be biased, we’re pretty sure we have the most incredible Entourage around! Every single day you manage to reach out to us, and touch us in the... Leia mais
6 dicas para se levantar depois de ser derrubado
The other week, I got some disappointing news at the doctor’s. I have to be honest, it caught me off guard and knocked me down. It also got me thinking... Leia mais
Emily é homenageada como "Campeã da Mudança" pela Casa Branca
Emily spent last Wednesday at the White House as one of nine individuals honored as a Champion of Change for President Obama’s Precision Medicine Initiative. “This recognition from the White... Leia mais
#FactFriday
After wrapping up another wildly successful CF Awareness month, we wanted to thank YOU for your wonderful engagement and enthusiasm throughout the month of May! Today we want to share... Leia mais
Apenas por um dia: Um olhar interno sobre a vida de Emily com FC
Have you ever wondered what it would be like to live with CF—just for one single day? To do hours upon hours of medical treatments and endure disease complications while also... Leia mais
Perspectiva de uma mãe: Comemorando o Dia das Mães com a mãe de Emily
Emily’s Entourage would like to wish a very happy Mother’s Day to all the special mothers out there! To celebrate this important day, we asked supermom Liza to answer some... Leia mais
Destaque para o membro da diretoria da EE: Heather Braver
We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know... Leia mais
Membro da diretoria da EE em destaque: Rachael Packer
We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know... Leia mais
Emily's Entourage abraça nova liderança
Emily’s Entourage is pleased to announce a new board/committee structure as we move from a startup nonprofit to a more developed, sustainable organization with real, measurable impact. Emily’s Entourage was... Leia mais
Faça barulho: Maio é o Mês da Conscientização sobre a Fibrose Cística!
Emily’s Entourage has many things planned to help recognize and celebrate the month of May as National Cystic Fibrosis Awareness Month! Whether you’re a loyal EE member or new to... Leia mais
Grande festa fácil da EE: Estudantes de Tulane lutam por uma cura
Two weeks after the biggest Entourage gathering yet and we’re still flying high, just like those little hot air balloons on our EE tees. We’re over the moon and so... Leia mais
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