Emily's Entourage

13 out 2015

Emily's Entourage assumirá a Maratona da Filadélfia de 2015 pelo segundo ano

In the cystic fibrosis (“CF”) community, the simple, often involuntary, act of taking a breath resonates deeply. Among other symptoms, CF patients deal with the buildup of mucus in their...

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05 out 2015

Vote na Emily para ser a heroína da saúde da Filadélfia

Our very own Emily has qualified as a semifinalist in the “Health Hero Challenge” by Philadelphia Magazine. And the best news? It’s up to US to win this prestigious honor –...

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30 set 2015

Anunciando nossa campanha Emily's Entourage Champions!

It’s been an exciting and groundbreaking year for Emily’s Entourage and we could not have done it without all of you! To highlight our amazing supporters, we are launching a...

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21 set 2015

Emily retorna à Stanford Medicine X como palestrante e consultora

This week, Emily is thrilled to be back as a featured speaker at the annual Stanford Medicine X conference – this time not only as a speaker and panelist, but...

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30 ago 2015

Um poema inspirado

Although we may be biased, we’re pretty sure we have the most incredible Entourage around! Every single day you manage to reach out to us, and touch us in the...

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27 jul 2015

6 dicas para se levantar depois de ser derrubado

The other week, I got some disappointing news at the doctor’s. I have to be honest, it caught me off guard and knocked me down. It also got me thinking...

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13 jul 2015

Emily é homenageada como "Campeã da Mudança" pela Casa Branca

Emily spent last Wednesday at the White House as one of nine individuals honored as a Champion of Change for President Obama’s Precision Medicine Initiative. “This recognition from the White...

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25 jun 2015

#FactFriday

After wrapping up another wildly successful CF Awareness month, we wanted to thank YOU for your wonderful engagement and enthusiasm throughout the month of May! Today we want to share...

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18 maio 2015

Apenas por um dia: Um olhar interno sobre a vida de Emily com FC

Have you ever wondered what it would be like to live with CF—just for one single day? To do hours upon hours of medical treatments and endure disease complications while also...

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10 de maio de 2015

Perspectiva de uma mãe: Comemorando o Dia das Mães com a mãe de Emily

Emily’s Entourage would like to wish a very happy Mother’s Day to all the special mothers out there! To celebrate this important day, we asked supermom Liza to answer some...

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07 de maio de 2015

Destaque para o membro da diretoria da EE: Heather Braver

We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know...

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05 de maio de 2015

Membro da diretoria da EE em destaque: Rachael Packer

We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know...

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04 de maio de 2015

Emily's Entourage abraça nova liderança

Emily’s Entourage is pleased to announce a new board/committee structure as we move from a startup nonprofit to a more developed, sustainable organization with real, measurable impact. Emily’s Entourage was...

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29 abr 2015

Faça barulho: Maio é o Mês da Conscientização sobre a Fibrose Cística!

Emily’s Entourage has many things planned to help recognize and celebrate the month of May as National Cystic Fibrosis Awareness Month! Whether you’re a loyal EE member or new to...

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13 abr 2015

Grande festa fácil da EE: Estudantes de Tulane lutam por uma cura

Two weeks after the biggest Entourage gathering yet and we’re still flying high, just like those little hot air balloons on our EE tees. We’re over the moon and so...

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29 mar 2015

Emily's Entourage lança novo site

We are thrilled to announce the launch of our new Emily’s Entourage website featuring a brand new “virtual look.” EE is growing up and we are so excited that our website is following suit....

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03 mar 2015

#TBT: retrospectiva da nossa terceira noite anual com a Emily's Entourage!

For our third annual “Evening with Emily’s Entourage”, we headed to the western Philadelphia suburbs and found a wonderful venue at the Baldwin School. We were absolutely overwhelmed by the...

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28 de janeiro de 2015

Simpósio Emily's Entourage sobre Mutações Nonsense da Fibrose Cística

On Jan. 21, Emily’s Entourage hosted a scientific symposium to accelerate research for nonsense mutations of Cystic Fibrosis in partnership with Penn Medicine’s Orphan Disease Center. The event kicked off...

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18 de janeiro de 2015

Coisas que aprendi em meus 20 anos

Last week, I turned 30. Nobody’s mind was more blown by this milestone than mine. It’s not that I didn’t plan to get here, but 30 just feels so grown...

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08 jan 2015

Feliz aniversário de 30 anos, Emily!

Hi everyone, Jess from the Entourage here! Today marks a huge milestone birthday for our namesake and inspiration, Emily Kramer-Golinkoff. To help honor the occasion, I wanted to share a...

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Blogue

Emily's Entourage assumirá a Maratona da Filadélfia de 2015 pelo segundo ano

Vote na Emily para ser a heroína da saúde da Filadélfia

Anunciando nossa campanha Emily's Entourage Champions!

Emily retorna à Stanford Medicine X como palestrante e consultora

Um poema inspirado

6 dicas para se levantar depois de ser derrubado

Emily é homenageada como "Campeã da Mudança" pela Casa Branca

#FactFriday

Apenas por um dia: Um olhar interno sobre a vida de Emily com FC

Perspectiva de uma mãe: Comemorando o Dia das Mães com a mãe de Emily

Destaque para o membro da diretoria da EE: Heather Braver

Membro da diretoria da EE em destaque: Rachael Packer

Emily's Entourage abraça nova liderança

Faça barulho: Maio é o Mês da Conscientização sobre a Fibrose Cística!

Grande festa fácil da EE: Estudantes de Tulane lutam por uma cura

Emily's Entourage lança novo site

#TBT: retrospectiva da nossa terceira noite anual com a Emily's Entourage!

Simpósio Emily's Entourage sobre Mutações Nonsense da Fibrose Cística

Coisas que aprendi em meus 20 anos

Feliz aniversário de 30 anos, Emily!

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