Patient Registry

Emily’s Entourage maintains a registry of individuals with nonsense mutations of Cystic Fibrosis. The purpose of the registry is to collect limited information about these individuals so that Emily’s Entourage may inform them about relevant research, clinical advances and drug trials.

To add your name and information to the database, please fill out the form below. 


We will use this information to send you news and updates about Emily’s Entourage and provide opportunities to support our research.