Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
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EE העניקה מיליוני דולרים לצוותים רב-תחומיים ברחבי העולם כדי לקדם מחקר ופיתוח תרופות עבור ה-10% הסופי של אנשים עם CF.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Cystic Fibrosis Awareness Month 2025 is here, and at Emily’s Entourage (EE), we’re celebrating the unwavering spirit of the cystic fibrosis (CF) community. This month... קרא עוד
For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough has been challenging.... קרא עוד
Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape where too many... קרא עוד