Emilys tips för att odla superpatienter
When it comes to managing life with a chronic illness, taking all your medications and following your treatment regimen isn’t as simple as you might... Läs mer om
Snabba genombrott för cystisk fibros
Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
BIDRAG VI FINANSIERAR
EE har delat ut miljontals dollar till tvärvetenskapliga team runt om i världen för att främja forskning och läkemedelsutveckling för de sista 10% hos personer med CF.
2025 EE GALA
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
PATIENTDATABAS
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
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Emily talar om judiska genetiska sjukdomar vid Har Zion-templet
On January 12th, Har Zion Temple in Penn Valley, PA presented a program entitled ‘“Fitting into Your Genes: Jewish Genetic Diseases — Data, Dilemmas and... Läs mer om
Fantastiska februarievenemang för Emily's Entourage
February is full of fitness and fun in support of Emily’s Entourage and our quest to find a cure for Cystic Fibrosis. Mark your calendars... Läs mer om
Vi kommer att använda denna information för att skicka dig nyheter och uppdateringar om Emily's Entourage och erbjuda möjligheter att stödja vår forskning.
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