Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
BIDRAG VI FINANSIERAR
EE har delat ut miljontals dollar till tvärvetenskapliga team runt om i världen för att främja forskning och läkemedelsutveckling för de sista 10% hos personer med CF.
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with Emily to give... Läs mer om
Today’s guest blog post was written by Emily and adapted from a speech delivered at the Global Genes and Penn Orphan Disease Center’s Rare Patient... Läs mer om
Vi kommer att använda denna information för att skicka dig nyheter och uppdateringar om Emily's Entourage och erbjuda möjligheter att stödja vår forskning.