EE lanserar Organoid-screening av nonsensmutation vid cystisk fibros
Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands.... Läs mer om
BIDRAG VI FINANSIERAR
EE har delat ut miljontals dollar till tvärvetenskapliga team runt om i världen för att främja forskning och läkemedelsutveckling för de sista 10% hos personer med CF.
2025 EE GALA
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
PATIENTDATABAS
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Från Arizona till Alabama: Ökad medvetenhet om veckan för sällsynta sjukdomar
Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer... Läs mer om
Förälska dig i Emily's Entourage: Möt Sarena
Our #FallinLovEE with EE Series continues this month, this time with longtime EE friend, volunteer, and go-to gal, Sarena Snider. As Sarena recounts how she... Läs mer om
Grattis på 33-årsdagen, Emily!
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest... Läs mer om
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