EE åker till D.C. för Health Datapalooza 2019
On March 27, Emily’s Entourage (EE) heads to Washington, D.C. to attend Health Datapalooza 2019. Emily, EE co-founder, will participate in the mainstage opening session... Läs mer om
BIDRAG VI FINANSIERAR
EE har delat ut miljontals dollar till tvärvetenskapliga team runt om i världen för att främja forskning och läkemedelsutveckling för de sista 10% hos personer med CF.
2025 EE GALA
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
PATIENTDATABAS
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Emilys tankar om "Five Feet Apart"
“Have you seen the film? What do you think?” I’ve been encountering these questions everywhere I turn, in real life and on the internet. They... Läs mer om
EE vågar vara sällsynt: Dagen för sällsynta sjukdomar 2019
This February 28 marks the 12th Annual Rare Disease Day, a worldwide campaign to bring about critical awareness for rare diseases. This campaign, while primarily... Läs mer om
Bli förälskad i Emily's Entourage: Möt Emily och Judah, medordförande för EENY 2019
Our next installment of #FallinLovEE with EE includes a very special announcement: Emily Priebe and Judah Levine, co-founders of the community events company Eesho, will... Läs mer om
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