Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
I SUSSIDI CHE FINANZIAMO
EE ha assegnato milioni di dollari a gruppi multidisciplinari in tutto il mondo per far progredire la ricerca e lo sviluppo di farmaci per il 10% finale delle persone affette da FC.
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
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Can you hear that? That’s the sound of silos shattering… obstacles crumbling… the limits of what’s possible smashed to pieces — and it’s still reverberating... Per saperne di più
Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be than among other... Per saperne di più
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest... Per saperne di più
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