Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
I SUSSIDI CHE FINANZIAMO
EE ha assegnato milioni di dollari a gruppi multidisciplinari in tutto il mondo per far progredire la ricerca e lo sviluppo di farmaci per il 10% finale delle persone affette da FC.
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
By Erin Moore, mother of a child with cystic fibrosis “They told you he has CF, right?,” the doctor said while he finished dressing in... Per saperne di più
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf... Per saperne di più
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf... Per saperne di più
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