Treffen Sie die EENY-Champions 2021
About The Champions The Emily’s Entourage (EE) Champions campaign recognizes philanthropic leaders helping to make a difference in the mission to speed life-saving breakthroughs and... Mehr lesen
VON UNS GEFÖRDERTE ZUSCHÜSSE
EE hat Millionen von Dollar an multidisziplinäre Teams in der ganzen Welt vergeben, um die Forschung und die Entwicklung von Medikamenten für die endgültige 10% von Menschen mit Mukoviszidose voranzutreiben.
2025 EE GALA
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
PATIENTENDATENBANK
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Bildung und Gemeinschaft: Lebenslinien für das Leben mit CF
We are honored to share voices from the Cystic Fibrosis (CF) community as part of our blog series for CF Awareness Month. Today’s guest writer... Mehr lesen
SCHNAPP DIR EINEN MARKER UND #CROSSOUTCF: MAI IST DER MONAT DER MUKOVISZIDOSE
During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a common mission to... Mehr lesen
EE-Woche der Seltenen Krankheit 2021: "Selten ist überall"
Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to raise awareness for... Mehr lesen
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