EE Presents First-Ever Virtual Video Premiere Event

Groundbreaking Non-Profit Raises Critical Funds for Cystic Fibrosis through First-Ever Virtual Campaign 

Lower Merion, PA — Emily’s Entourage (EE), an innovative 501(c)3 foundation that has raised millions since 2011 to speed research and drug development for Cystic Fibrosis (CF), presents “The Magic Line” Virtual Video Premiere and Campaign Launch üzerinde Tuesday, December 8, 2020 at 8pm ET.

In light of COVID-19, EE has converted its signature Emily'nin Çevresiyle Akşam gala, which raises over $800,000 annually, into a reimagined, new, virtual format. The result is an immersive, multimedia campaign called Sihirli Hat: A Virtual Campaign to Conquer the Final CF Summit that launches with the Video Premiere event on December 8th. The event raises critical funds to speed life-saving medical breakthroughs and a cure for those with nonsense mutation of CF who do not benefit from currently available mutation-targeted therapies. 

The Video Premiere features the debut of EE’s 2021 campaign video, a compelling conversation about reaching new heights with world-class mountaineer and motivational speaker, Adrian Ballinger, moving testimonials from the CF community, and remarks from EE Co-Founder, Emily Kramer-Golinkoff. “The Magic Line” theme is inspired by a route to the top of K2, the last of the most elite, 8,000+ meter mountains to be summited in the winter. It is a metaphor for EE’s urgent mission to speed breakthroughs and a cure for the final 10% of the CF community without targeted therapies—the final summit of CF.  

“There are revolutionary new treatments available for 90% of the CF population. Unfortunately, those with rare nonsense mutations of CF fall in the outlying 10% that do not benefit from these new treatments. At Emily’s Entourage, we believe that everyone with CF deserves realistic hope for a future and for a deep breath. That’s why we are laser focused on speeding life-saving breakthroughs and a cure for the final 10% of the CF community, so nobody is left behind,” says EE Co-Founder, Emily Kramer-Golinkoff. 

The Video Premiere gathers nearly 800 corporate partners, philanthropic leaders, prominent business executives, young professionals, community leaders, and members of the CF and rare disease communities from across the world. The event is made possible by “Presenting” sponsor, Vertex Pharmaceuticals Inc, “Amethyst” sponsor, Mylan, “Violet” sponsors, Arrowhead Pharmaceuticals, Spirovant Sciences, Tito’s Handmade Vodka and Translate Bio, along with many others. 

In addition to the Video Premiere and Campaign Launch on December 8, the month-long “The Magic Line” campaign features curated content and immersive video storytelling, peer-to-peer engagement, and an online auction with one-of-a-kind experiences. It culminates on January 12, 2021 with a birthday party and gratitude event to celebrate Emily’s 36th birthday and express gratitude to the Entourage for its campaign support.

EE was founded in 2011 by Emily, her family and friends as they decided to take action into their own hands to find breakthroughs and a cure for those with nonsense mutations of CF, a fatal genetic disease that affects the lungs and digestive system. Nonsense mutations, while rare among those with CF, are the cause of approximately 12% of all genetic diseases, affecting roughly 30 million people around the world. The impact of EE’s revolutionary research and drug development has the potential to extend far beyond the CF community to those with a wide variety of genetic diseases caused by nonsense mutations, including certain forms of muscular dystrophy, blood disorders and even some forms of cancer.

Funds raised through this year’s “The Magic Line” campaign propel EE’s life-saving research to accelerate breakthroughs and a cure for CF. The VIdeo Premiere event is free, but registration is required. For more information and to register and purchase sponsorships, please visit: EmilysEntourage.org/TheMagicLine

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Emily'nin Çevresi Hakkında

Emily’s Entourage is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for nonsense mutations of Cystic Fibrosis (CF), a fatal genetic disease primarily affecting the lungs and digestive system. Since 2011, Emily’s Entourage (EE) has awarded millions of dollars in research grants, launched a CF gene therapy company recently acquired by a large pharmaceutical company, and led worldwide efforts to drive high-impact research and drug development. The organization has been featured in national media, including The New York Times, STAT, CNN, People and more.

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