Terceira Noite Anual com o Leilão Silencioso Emily's Entourage
We are incredibly excited for our gala event THIS SATURDAY and we wanted to give you just a little taste of what our amazing silent auction has to offer! There... Leia mais
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#GivingTuesday: Um dia para retribuir e olhar para frente
#GivingTuesday is a global day dedicated to giving back by paying it forward. Here at EE, we feel indescribably grateful for an Entourage that exudes the giving spirit and reminds... Leia mais
Nossos corredores da Maratona da Filadélfia: Conheça a Equipe EE!
This Sunday, November 23, we are thrilled to have the first ever Emily’s Entourage team running in the Philadelphia Marathon. We are so proud of the incredible group of people... Leia mais
Os 4 principais motivos da EE para tomar a vacina contra a gripe hoje
Have you gotten your flu shot yet? Now’s the perfect time! There’s a lot of attention on Ebola right now, and that’s certainly a serious concern, but the flu is... Leia mais
Perguntas e respostas da revista PharmaTimes com Emily
“Everyone Deserves A Deep Breath” Interview originally published in PharmaTimes Magazine and available here Emily Kramer-Golinkoff was six weeks old when she was diagnosed with cystic fibrosis. She is now... Leia mais
Junte-se à Equipe EE na Maratona da Filadélfia de 2014
Emily’s Entourage is thrilled to be an official charity partner of the 2014 Gore-tex Philadelphia Marathon! We still have a few spots open on the team for either the Full or... Leia mais
Onde está a Emily do Emily's Entourage?
Where in the world is Emily?? That’s the question we were asking ourselves all week! It seems like lately there’s never a dull moment, and this week was certainly no... Leia mais
Como a jornada de Emily com a FC mudou minha perspectiva sobre a saúde
We are thrilled to share a blog post from Bea Abbott, a close friend of Emily’s and the entire Kramer-Golinkoff family, as well as a special source of support and... Leia mais
Blog da Universidade George Washington apresenta a discussão sobre os grandes desafios do TEDMED Emily's Entourage
Emily’s Entourage was thrilled to be featured in a blog post recapping Emily’s recent TEDMED Great Challenges discussion. The post enables Emily and her fellow panelists’ to share their important... Leia mais
EE reflete sobre o passado... e olha para o futuro...
As another successful CF Awareness Month comes to a close, all of us at Emily’s Entourage are taking a moment to reflect on how far we’ve come…… When we pressed... Leia mais
A "Bucket List" de sonhos de vida de Emily
In my 29 years with CF, there are still so many things I don’t understand about this crazy disease, but if there’s one thing I’ve learned, it’s that uncertainty is... Leia mais
Maio é o Mês da Conscientização sobre a Fibrose Cística: Espalhe a palavra
Emily’s Entourage is proud to participate in recognizing the month of May as National CF Awareness Month. This is a great time for EE to work alongside the CF community... Leia mais
Emily responde a 24 perguntas sobre a vida e a FC
Emily’s Entourage is pleased to have this month as an opportunity to shine the light on CF and on our efforts to combat this devastating disease. An awareness month is... Leia mais
EE em destaque: Nickie Boston
Today, we are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. The goal of the “Spotlight Series” is... Leia mais
A Emily do Emily's Entourage discursa na Universidade de Tulane
SPOTTED: THE Emily, of Emily’s Entourage, motivating a room full of 100+ Tulane students to get out and make a difference by choosing a path of action in their lives.... Leia mais
Dicas da Emily para cultivar superpacientes
When it comes to managing life with a chronic illness, taking all your medications and following your treatment regimen isn’t as simple as you might think. In fact, it’s often... Leia mais
Lobs of Love: Um torneio feminino de duplas round robin em benefício da Emily's Entourage
On Tuesday, February 4th, we were delighted to cheer on 28 fabulous women as they demonstrated their best serves, forehands and backhands for a great cause. They participated in a... Leia mais
Emily fala sobre Doenças Genéticas Judaicas no Templo Har Zion
On January 12th, Har Zion Temple in Penn Valley, PA presented a program entitled ‘“Fitting into Your Genes: Jewish Genetic Diseases — Data, Dilemmas and Decisions.” The discussions covered hereditary... Leia mais
Eventos fabulosos de fevereiro para a Emily's Entourage
February is full of fitness and fun in support of Emily’s Entourage and our quest to find a cure for Cystic Fibrosis. Mark your calendars and join us for the... Leia mais
#Quinta-feira de retrospectiva: Algumas de nossas lembranças favoritas com a Emily!
Hello everyone! It’s Jess here, and I wanted to ask you to join me and all of EE in wishing Emily a VERY happy birthday!!! For Throwback Thursday, we wanted... Leia mais
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