Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands.... Lire la suite
Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer... Lire la suite
Our #FallinLovEE with EE Series continues this month, this time with longtime EE friend, volunteer, and go-to gal, Sarena Snider. As Sarena recounts how she... Lire la suite
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest... Lire la suite
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