Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
FONLADIĞIMIZ HİBELER
EE, KF'li kişilerin son 10%'si için araştırma ve ilaç geliştirmeyi ilerletmek amacıyla dünyanın dört bir yanındaki çok disiplinli ekiplere milyonlarca dolar ödül vermiştir.
Kistik fibroz klinik deneme eşleştirme programımız doğrudan tüketiciye yöneliktir ve deneme alımını daha hızlı, daha hedefli ve daha verimli hale getirir.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
We are thrilled to announce the launch of our new Emily’s Entourage website featuring a brand new “virtual look.” EE is growing up and we are so excited that... Daha fazla bilgi edinin
For our third annual “Evening with Emily’s Entourage”, we headed to the western Philadelphia suburbs and found a wonderful venue at the Baldwin School. We... Daha fazla bilgi edinin
On Jan. 21, Emily’s Entourage hosted a scientific symposium to accelerate research for nonsense mutations of Cystic Fibrosis in partnership with Penn Medicine’s Orphan Disease... Daha fazla bilgi edinin
Last week, I turned 30. Nobody’s mind was more blown by this milestone than mine. It’s not that I didn’t plan to get here, but... Daha fazla bilgi edinin