Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
FONLADIĞIMIZ HİBELER
EE, KF'li kişilerin son 10%'si için araştırma ve ilaç geliştirmeyi ilerletmek amacıyla dünyanın dört bir yanındaki çok disiplinli ekiplere milyonlarca dolar ödül vermiştir.
Kistik fibroz klinik deneme eşleştirme programımız doğrudan tüketiciye yöneliktir ve deneme alımını daha hızlı, daha hedefli ve daha verimli hale getirir.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest... Daha fazla bilgi edinin
We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with Emily to give... Daha fazla bilgi edinin
Today’s guest blog post was written by Emily and adapted from a speech delivered at the Global Genes and Penn Orphan Disease Center’s Rare Patient... Daha fazla bilgi edinin
Bronwyn Breitner, the big and bold thinker of EE This blog post is part of our sEEcret sauce blog series highlighting some of our most... Daha fazla bilgi edinin