EE à la Narberth CF Run !
Hi all! This past Saturday (4/21), EE members participated in the Annual Narberth Cystic Fibrosis Run. It is a 5-mile hilly course that winds through... Lire la suite
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Des avancées rapides pour la mucoviscidose
Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
2025 EE GALA
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
BASE DE DONNÉES DES PATIENTS
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Articles de blog récents
Emily reçoit une bourse d'études CFCareForward de $19 000 !
Earlier this year, Abbott awarded Emily the “Thriving Graduate Student” scholarship through the CFCareForward Program! The $19,000 scholarship is given to a graduate student with... Lire la suite
EE fait les Flyers !
Hi All! This past Tuesday EE was blessed with another incredible opportunity during the Flyers game when Emily’s Entourage was officially recognized as a community... Lire la suite
Remerciements de l'EE à notre donateur anonyme
Hi all, We wanted to share with you a thank you video that we recently made for the anonymous donor. To remind you, in December,... Lire la suite
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